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Walker / Jenkins Families
The Teviotdale web-site is dedicated to the memory of members
of my family who endured the effects of the heredity disease,
Limb Girdle Muscular Dystrophy.
To my maternal grandfather Walker, who suffered from it late
in life, not knowing the nature of his disability. Grandfather
Walker died sometime during the 1940's, he was in his early seventies
(70's) when he passed away.
To Grandfather Walker's daughter, my mother, Ethel Victoria Jenkins,
who began to suffer from the effects of Muscular Dystrophy in
her late thirties. Ethel Jenkins found that she had increasing
difficulty in walking; at the time she called it her 'Creeping
Paralysis'. Ethel lived to the age of 84; in her later years
confined to a wheel chair, lovingly looked after by my sister
Margaret Grace Jenkins.
To my brother, Henry Jenkins. In the case of Henry, Muscular
Dystrophy began to take its toll in his late teens and early twenties.
Henry emigrated to New Zealand and it was only here, and due to
his increasing weakness and walking difficulty, that he was diagnosed
as suffering from the rare heredity disease of Muscular Dystrophy.
It was at this time that we realised that my mother, Ethel was
also suffering from the same condition.
Henry Jenkins came back to the United Kingdom in 1953 to have
the diagnoses confirmed. Henry lived to the age of seventy
one, unable to cope with the condition and its complications,
and with the help of his wife Sybille, they both committed suicide
To my elder sister, Margaret Grace Jenkins, born in 1923.
Margaret began to suffer from the effects of Muscular Dystrophy
in her late seventies, and until her death at the age of 89 in
In the case of my other brother, Alexander Jenkins, and myself
Stuart McEwen Jenkins, we have been lucky. However, in my
case I was advised at the time of my marriage that I had a one-in-four
chance of passing the disease on to any of my children.
As a result, my wife Juliet and I, decided to adopt. We
now have the most wonderful daughter, Melanie Grace Burgess who
was born on 2nd August 1968. Although grown up now and living
with her husband John, we are both extremely proud of her achievements.
Stuart McEwen Jenkins. June 2014.